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Our resources and outputs, enabling
health and care research in the UK

Resource Exchange

Search Category: Research Ethics and Ethical Research

10 tips for writing a lay summary
Type: Blog
Author: The Academy of Medical Sciences
Keywords: lay summary, research ethics, ethical research, protocol, grant writing, summaries, PPI, patient and public involvement, transparency
Link Reference: 2836
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Considerations and recommendations for conducting qualitative research interviews with palliative and end-of-life care patients in the home setting: a consensus paper
Type: Article
Author: BMJ: Supportive & Palliative Care – Marie Curie Palliative Care Research Centre, Cardiff University
Keywords: qualitative research, ethics, end of life, home setting, research conduct, ethical conduct, interviews, research practice, palliative care, consensus
Link Reference: 736
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Draft ethics guidelines for trust worthy AI
Type: Guide
Author: European Commission
Keywords: Ethics, ethical research, AI
Additional Detail: Draft for consultation
Link Reference: 727
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Ethical issues of health research involving children and young people
Type: Website resources
Author: Jenny Preston,
Keywords: Consent, PPI, paediatric research, children and young people, assent, dissent, research design, research ethics, ethical research,
Additional Detail: Includes a blog, articles, infographics and a podcast
Link Reference: 765
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HRA Public Involvement Guidance for Research Applicants:
Type: Guidance
Author: Health Research Authority
Keywords: IRAS, research ethics, PPI, REC application, research application, HRA application
Link Reference: 651
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Research Ethics Library
Type: Website resources
Author: Norwegian National Library
Keywords: Ethics
Additional Detail: NB: This is a Norwegian tool but very comprehensive
Link Reference: 391
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Research ethics, publication ethics and good practice guidelines
Type: Website resources
Author: EQUATOR Network
Keywords: Ethics, Grant, Academic
Link Reference: 390
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Study Participant Feedback Questionnaire (SPFQ) Toolkit
Type: Toolkit
Author: Transcelerate
Keywords: Patient participation, transparency, Sponsorship, set up, feedback, oversight, process, Sponsors, sponsor process, project design
Link Reference: 782
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What does a great lay summary look like?
Type: Example
Author: The Academy of Medical Sciences
Keywords: lay summary, research ethics, ethical research, protocol, grant writing, summaries, PPI, patient and public involvement, transparency
Link Reference: 2835
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